It’s been five months since my stroke, and four months since my last blogpo about it. But Friday was another big milestone, and well worth another update.

It’s been a long road getting here. My stroke required a four-day hospital stay, and since my discharge, I’ve:

The Amplatzer Talisman Patent Foramen Ovale Occluder!!!

The Amplatzer Talisman Patent Foramen Ovale Occluder!!!

  • Visited my PCP twice and consulted with him online once
  • Visited my cardiologist twice
  • Visited my neurologist once
  • Visited my hematologist once
  • Had two lab blood draws and work-ups
  • Wore a heart monitoring device for a month
  • Consulted with a nutritionist three times
  • Had my cardiologist perform an in-hospital procedure called a “TEE test” where a camera was sent down my esophagus to observe the condition of my heart
  • Had an in-hospital radiologist perform an ultrasound to examine my legs for evidence of blood clots

At least that’s the ones I remember, and that doesn’t include another dozen-odd phone calls and emails, plus lots of wrangling with my insurance company over coverage and claims. Fun times!

All that work was intended to determine why my stroke occurred. But it didn’t.

In cases where there’s no smoking gun, cardiologists look at a specific feature of the heart called the foramen ovale. That’s a small hole between the heart’s two atria that allows blood to bypass going to the lungs before a unborn child begins breathing on its own. After birth, that opening usually closes and fuses shut.

But for one in four adults, that opening doesn’t fully close, which allows a small amount of unoxygenated blood returning to the heart through the veins to bypass the lungs and go straight back into the blood stream to the rest of the body. For most people, this isn’t a problem, but if a blood clot sneaks through that side door and travels to the brain, it can cause a stroke. So it’s one of the things that cardiologists look for when an otherwise healthy person has an unexplainable stroke.

Needless to say, that TEE test I had confirmed that hole in my heart, called a “patent foramen ovale”, or PFO. Ideally, if one could seal that opening between two chambers of the heart, it would prevent any possibility of that defect causing another stroke.

Amazingly, not only is PFO closure something modern medicine can actually do, but it’s considered low-risk and pretty routine. A thin catheter is inserted into the major femoral vein in the groin and up that vein directly into the heart itself. A collapsable metal device – it kind of reminds me of a mesh kitchen strainer – is sent through the catheter and deployed inside that hole, sealing it shut. Visually, it’s like a disc the size of a dime on one side of the opening, and another the size of a quarter on the other side, connected by a very short rod in the middle. See the goddamned photo (it’s not my favorite thing to look at, I’m afraid).

In order to ensure this all goes well, a second catheter – this one bearing a microscopic camera – is threaded up the femoral vein on the other side of the groin. And in my case I think a second camera was sent in through my arm, as well. Throw in an IV for fluids and anesthesia, and that’s a whole lotta jabs!

As I say, this is now considered pretty low-risk and routine. Patients are usually walking and sent home a couple hours later, and I was apparently the third PFO closure that my cardiologist had scheduled that day.

But from the patient’s (my) point of view, having a chunk of metal surgically implanted permanently inside my heart isn’t something I’d consider “routine”!

So leading up to Friday’s procedure, I had a fair share of anxiety about heart surgery and metal implants. It sounded like a whole lot of expense and effort just to reduce my chances of a stroke, especially when there was no clear evidence that this is what caused mine. I’ve been blessed to have never relied on the medical industry very much, so my nerves were pretty highly activated in the lead-up to my surgery.

Fortunately, I had my partner Inna to lean on, plus a number of friends who took an interest and expressed empathy and compassion, including but certainly not limited to Carolyn, Helen, Sally, Robie, Rhonda, Ben, and some of my PMC riding buddies. I might be going through some medical trauma, but I didn’t feel like I was doing it all alone, and that made a huge difference.

Happily, the procedure seems to have gone well, at least from the perspective of a couple days post-op. So now my concerns and preoccupations are focused primarily on the somewhat-involved process of recuperation.

Short-term, I’ve got some annoying restrictions, mostly so I don’t rip open those incisions into major veins. That means no driving, no flying, no lifting, and virtually no exercise. Those restrictions will ease over the coming weeks, but this will curtail and require a major reset for both my cycling and my kyūdō practice. For more on how this operation will impact my cycling, see the companion post on my cycling blog.

So for now I’ll be getting back some free time, which will be put to use catching up on some low-priority projects that I’ve deferred for ages: things like revising several bits of old computer code I rely on, cleaning up my personal online archives, and the like.

From a cardiac perspective, the most important short-term concern is to rabidly guard against any possible infections that might lead to endocarditis. Not only does that mean frequent washing with antibacterial soap, but more aggressive precautions. I’m literally not allowed to see a dentist for at least 6 months, and will need to take antibiotics before every dental appointment – even just cleanings! – for the rest of my life!

And of course there’ll be more medical followups. At minimum there’ll be another cardiac ultrasound to verify the work, plus followup meetings with my cardiologist and PCP.

But things seem under control at the moment, and hopefully I’ll be making a full recovery, after giving things a month or two (or six) to properly heal. And now I look forward to getting back to posting some less dramatic and more typical content!

Austinitis

Jan. 19th, 2023 10:35 am

Our move over the holidays from Pittsburgh to Austin was a long, hard road… both literally and figuratively. Here are some of the lowlights (plus a couple highlights) from the hectic, stressful, and eventful month gone by.

Final week at Hobart Street

Boxing up Hobart Street produced an unanticipated cat fortress!

Boxing up Hobart Street produced an unanticipated cat fortress!

Closing the book on the Hobart Street apartment

Closing the book on the Hobart Street apartment

Hell is real... especially in Ohio!

Hell is real... especially in Ohio!

Home at last, after a 1,450-mile road trip

Home at last, after a 1,450-mile road trip

Orny broke a couple chairs out of the moving trailer to make the wait for our movers more comfortable

Orny broke a couple chairs out of the moving trailer to make the wait for our movers more comfortable

We successfully moved our huge pile of mess from one place to another

We successfully moved our huge pile of mess from one place to another

The lease on our new Austin home began on December 15, but there was no way Inna and I could finish packing up our belongings that quickly, so we made arrangements with movers for December 28th.

The overwhelming sensation in December was stress. All the packing, selling, giving away, donating, or trashing all our belongings took time and the dust we kicked up caused my asthma to start acting up.

Then there was the weather. A week-long arctic blast brought record cold and wind chills below -25°F, and of course I’d prematurely sealed up the box containing my winter coat and boots. It was like the northeast -- where I’ve lived for my entire life -- was taking one final, vicious swipe at me for daring to move south.

The brutal cold snap laid bare some of our old apartment’s frailties. The window in our spare bedroom fell apart in my hands. The jerry-rigged kitchen sink plumbing gave way on Christmas Eve, and the landlord’s Christmas Day repairs only revealed further downstream blockages, presumably due to frozen pipes, so we were left with no water in the kitchen. All this trauma happened while Inna was out of town for four days, visiting family. It made me very glad we would be getting out of that death trap, if only Mother Nature would let us! But all this sure made it easier for us to leave Pittsburgh.

During the bitter cold, I had to post no-parking notices and claim four parallel parking spaces in front of our house that would be required for the 28-foot U-Pack trailer that we’d be loading into. Although it was a nerve-wracking wait for other people’s vehicles to move on, I was finally able to clear the space and the trailer was dropped off on time.

That night before loading day, Inna and I stuffed our cat Begemot into the car to go set up a temporary household in her mother’s condo a couple blocks away. But in the middle of a quick stop to pick up Indian food on busy Murray Ave, the car refused to start! This did nothing to assuage my anxiety about setting off on a 1,450-mile road trip in a 14 year old car!

After some worried fiddling, we managed to get the engine to turn over and drove our reduced household over to our temporary digs. But Begemot immediately hid himself in an inaccessible corner of the basement. And after we fished him out and confined him in our bedroom, he kept us awake the entire night while he suffered his own sneezing/asthma fits and freaked out over being in an unfamiliar place.

That was our segue into:

Week at Mom’s

After our first sleepless night at mom’s, the cold snap broke, and we went back to the apartment to meet four guys from “Zooming Moving” of Salem, Ohio who would load our belongings into the trailer. They seemed smart and fast, taking 2½ hours to load our 155-ish boxes and pieces of furniture into less space in the trailer than we believed possible. It was magical watching our place rapidly clear out, then seeing everything stuffed trash-compactor style into a tiny section of our trailer (FYI that was a clever bit of foreshadowing, there). When we asked them at the last minute, they even squeezed in four chairs that Inna had feared she’d have to give away.

Once the trailer was locked and the guys gone, Inna called and arranged to have U-Pack pick it up. I visited my oral surgeon for a previously-scheduled followup that was painless but carried disappointing news. Afterward I circled back to the old apartment and found the trailer had been hauled away, so I pulled down the parking signs and went across town to visit El Burro: a favorite burrito joint.

That was on Wednesday the 28th, but we didn’t plan to leave Pittsburgh until the following Tuesday, to avoid being on the road over the New Years holiday. So we had a week to close up the old apartment and hit up some favorite places, which included ice cream at Bruster’s, lunch at Pamela’s diner, and dinner from Thai and Noodle Outlet. For Inna in particular, it was the end of an era, having lived in that apartment for 12 years!

On one hand, it was a major relief that we could stop working like slaves; all the packing and planning was finally done and over with! We even had time to run a load of laundry! And we watched with delight as our stuff traveled to Ohio, then spent the holiday weekend in Arkansas, and arrived in Austin on Monday, eight days earlier than our promised delivery date!

On the other hand, we found ourselves with too much time and nothing to do, combined with the uncomfortably cold temperature of Inna’s mother’s condo. The waiting was especially hard on Inna, who -- having committed to the Austin move -- was eager to hit the road.

And I had time to reflect on how even the holidays had been out to get us this year. Halloween featured my oral surgery; Inna twisted her ankle during our Austin trip over Thanksgiving, and our old apartment’s electrical panel went bad the night we returned; a frigid Christmas featured frozen water pipes and hectic packing while Inna was away visiting her father; and we were spending New Years living out of a suitcase at Inna’s mother’s condo, while our new house and all our stuff was already waiting for us in Austin!

But time passed, the calendar ticked over to 2023, and our long-anticipated departure date finally arrived.

The Drive

Between our fatigue, a stressed-out cat, and our 14 year old car, we allocated three days for the 1,450-mile drive down to Austin. We’d made reservations at Red Roof Inns along the way, relying on their open policy toward pets. Setting out, we were tired and nervous, but happy that things had gone as well as they did.

We left Pittsburgh on Tuesday January 3th in steady rain that tapered off the further we went. The three of us all fared well, and after nine hours we pulled into our motel in Nashville. I downed a terrible “jalapeno cheez chicken” from the Mexican place next door and settled in. The room was garbage, with broken lights, thermostat, and faucet. Bigi’s stress-response asthma was really bad. Then at 5am a group of assholes came around screaming and pounding on doors, and took three body-slams attempting to bust our door in. It was very reminiscent of our horrifying experience at our Austin motel in November. What the fuck is it with you Southerners that you turn into raving murderous assholes when you go to a motel?

After a horrible night we set out on the middle leg of our journey. Inna did most of the driving on a sunny day, enjoying the 75 MPH speed limit through memorable towns like Bucksnort, Tennessee. In the middle of Arkansas we had our one worrying car malfunction when our tire pressure monitor signaled too high air pressure. But it reset after we pulled aside for a lengthy stop, and we proceeded more gingerly. Our motel in Texarkana was less run-down, but I was so wary about the guys hanging out in the parking lot that I couldn’t eat. Fortunately we didn’t have any more overnight visitors, but the cat’s asthma made for another rough night.

On the final day we got up and showered, then faced our shortest drive of the trip, all of which improved our moods. After seeing a bunch of beaver-bearing billboards advertising “Buc-ee’s” truck stop, Inna decided to stop and check one out. It’s kinda of like Pittsburgh’s Sheetz -- a local favorite convenience store -- only with the ridiculous size, decor, and attitude of a huge casino. We definitely weren’t in Kansas anymore! Then, as Austin came into welcome view, we reflected on how well both the car and cat had done on the road trip; the latter experiencing only one outburst in response to Inna’s singing along with her chosen tunes.

Arriving midafternoon on January 5th, our first stop was of course the new house. After discovering that the real estate agent’s promised lockbox was nowhere to be seen, we found the key literally under the doormat and let ourselves in, giving the place a quick once-over. I got our fiber internet router set up while Bigi began to to settle in; meanwhile, Inna made a grocery run and tried to track down the king-sized mattress that FedEx was supposed to deliver for us.

We’d reserved a hotel in Austin in case we got in late, and decided that was preferable to sleeping on the floor, so we bundled poor Bigi back into the car. Our room was fine, but we had another restless night and checked out early the next morning to spend the day at home, watching for our mattress.

Taking up residence

Watching for deliveries proved very fruitful, as we received not only our mattress, but also Inna’s laptop, which we’d dropped off at an Apple store in Pittsburgh for repairs, and a huge grocery bag full of useful stuff (including notably non-Heinz ketchup) from Inna’s former Pittsburgh/now Texas friend Traci.

After making my own grocery run, I was hanging around and saw a kid park his car at the end of our cul de sac and jog between our house and the neighbor’s. I shrugged it off as a local picking up something he’d forgotten. But ten minutes later Austin cops swarmed the area, took possession of the car, flagged me to tell them if I’d seen anything, and started a manhunt complete with search dogs! Day One in our new house, and there’s both criminals and police crawling around our property. I’m afraid Bigi was the only one of who was feeling secure in our new home. But hey, it was January 6 and a delightful 78°F!

Over the next three days we worked to slowly make the place more livable. We didn’t have anything to sit on, but procured our new mattress, bed sheets, food, trash bags, a dish rack, and started laundering things. Bigi’s asthma receded and he became more adventurous, but – in characteristic feline style – he also managed to cover himself in ashes while exploring the fireplace.

Getting our stuff home

Meanwhile, our stuff had been sitting at a shipping warehouse for a week, and we were eager to have it delivered. Because our house is on a steep hill and a narrow dead-end street, U-Pack couldn’t drop our trailer off at the house, so we had hired another moving company -- a national chain ironically named “Two Men and a Truck” -- to transfer our belongings into a smaller truck and shuttle it from U-Pack’s depot to the house.

Since the trailer had arrived early, we got the movers to bump our job up to Monday, but when we met them at the facility, they showed up in a truck that was even bigger than the trailer! And that was the smallest truck they had. No way could they move our stuff, nor would they move it into a smaller rental truck like a U-Haul. We were completely screwed. After much wrangling, their chief agreed to use a company minivan the next day to shuttle our stuff from the top of our hill down to our house. To add one more frustration to the day, I grazed a low retaining wall trying to back out of our insanely un-navigable driveway and knocked an exhaust tip from our Accord.

The next morning – January 10th – we met up with the movers and they shuttled our stuff from the U-Pack trailer into their big truck. That was when we learned the downside of the “amazing” packing job that Zooming Moving did back in Pittsburgh: lots of damaged belongings. Three pieces of wooden furniture were broken and more than half of the 22 plastic bins we’d used had been crushed. Fortunately, not much stuff had actually spilled out, so I used plastic wrap to patch together the shattered bins. But our poor stone “Boo-boo Buddha” statue – so named because he had originally come with a chipped knee – was now fully decapitated! The only good news was that our two big glass desktops had somehow arrived intact.

After loading and the 20-minute drive to our place, I showed their driver why U-Pack hadn’t dropped our trailer in front of our house: the steep, curving descent down our street, the overhanging tree branches, the sloping narrow driveway, and the limited space in our cul de sac for turning around. While using a panel van to shuttle our stuff would suck, we thought it too dangerous to try to bring a huge moving van down that hill.

But the driver was a young Black guy fresh out of high school, and he fearlessly wanted to try it. I told him it was all on them, but he actually managed it. He parked the van at a precarious tilt and chocked the wheels.

The movers still had to carry our stuff down the driveway, but they were able to unload, saving us the extra time, expense, and damage that using the minivan would have required. It wasn’t quite as magical seeing all our stuff pile up in the living room. But despite all our pointless worrying, the entire job was done in just over four hours, leaving us shoulder-deep in a fortress of cardboard boxes, broken plastic bins, and randomly-scattered furniture.

And with that, our long-anticipated move south and the month-long moving ordeal was finally complete! Even after so much stress and all the trials thrown at us, we were now in our new place in Austin, complete with all our stuff, including Inna’s car and Bigi the cat.

Our next step was to begin digging out from the mess, but we put that on hold long enough to enjoy a well-earned celebratory dinner at Inna’s favorite: Lupe’s Mexican restaurant.

Life since then…

It’s been a week and a half since our stuff arrived, and we’ve had time to address most of the mess and begin getting comfortable in our new base of operations. In the wake of our move, there’s lots of organizing, arranging, and decorating to do, but we can thankfully say that the hard work is complete and behind us.

In addition to literally “getting our house in order”, Inna and I have made our first few expeditions afield, starting to explore all that Austin has to offer. We’re really excited to start going places, seeing people, and doing things… Finally building the new life that the two of us have dreamed about for so very long.

Stay tuned for our further adventures!

Up, date!

Jun. 30th, 2007 06:02 pm

Time for a quick general update. Things have been pretty good of late.

On the work front, I’m not at the client site anymore, which is really nice. Still working for that big lingerie retailer, which is mostly okay. The other day I learned what a tanga is. Sadly, not through a hands-on demonstration.

And I’ve changed roles on the project from business analyst to UI engineer, which is great; I like to balance my work experience between business, creative, and technical roles/tasks.

Got my first performance review last week. It was pretty glowing, which is gratifying, considering I was instrumental in pulling this project out of the hole it had dug itself. The few criticisms I received were mostly about how we as a team could have better handled a couple issues, rather than any individual shortcomings, which was also encouraging.

Being at the home office also means I can go down to the Haymarket to buy produce on Fridays, which has really surprised me. Last week was typical: I got 10 limes, 6 bananas, and a quart of strawbs for $4; the limes alone would have cost me $10 at the grocery store in my neighborhood! The savings at Haymarket is just ludicrulous, and I’ve been eating a whole lot more produce lately as a result.

The other thing I’ve done for work is recreate an improved version of the foosball ranking application that we used to run at my last job. It runs off the Elo ratings system that’s used in ranking chess players, so it has a bit of advanced maths to it, but it also lends a bit more credibility. I’m pretty happy with it, and so far it’s been pretty popular with the boys at work.

A week or two ago I got an email out of the blue from a nonprofit that wants to use one of my photos for a member mailing, and potentially have me do a multi-location photo shoot for their website. Paid! Granted, I’m not gonna charge much at all, both because they’re a nonprofit and I can use it to build up my portfolio. And it’s got me learning about how to price photos and effectively negotiate copyright rights. So that’s very cool, but it doesn’t deserve more press than that until it’s a done deal. It’d be sweet to be able to say I’m a paid photographer, in addition to being a paid writer and award-winning poet!

Bought new luggage, too. I liked my old red wheeled Kenneth Cole duffel, but the fabric had torn, so it needed to be replaced. It only survived the trip to Las Vegas thanks to copious last-minute application of Gorilla Tape. I couldn’t decide between the larger or the smaller Samsonite wheeled duffels, so dang, I bought ’em both, and still paid half of what one Tumi bag would have cost. And they’re a very pretty royal blue, which makes me happy.

Went to the dentist for… uh… the first time since I was laid off by Sapient. I have to go back in a couple weeks for xray results and a real exam, but the hygienist seemed to think things were actually very good. I’d been fearing much worse.

My assistant editor is preparing and sending out the next issue of DargonZine. It’s wonderful that I don’t have to, although he’s taking his time at it for someone who set a goal of getting nine issues out this year. Still, I don’t envy him; it’s not bad when you know the process, but it’d be quite involved for someone not familiar with how it’s done and the dozen or so technologies behind it.

There’s a mess of health and bike stuff to talk about, but it’s all going to go into [livejournal.com profile] ornoth_cycling, where it belongs.

Except for this one comment. By the end of this year’s PMC ride, I’ll have raised around $26-$29k for the Jimmy Fund. Thinking about that, it’s kind of staggering. That’s enough money to buy a pretty decent car, or pay $1200 per month in rent for two years. It just staggers me that my friends have been so incredibly generous. Then you think about the 5,000 other people who ride each year, who have similar fundraising stories, and you get an idea of how massive an impact the PMC has on the Dana-Farber’s ability to advance the state of cancer treatment and prevention.

That’s a great thing to be a part of, and a nice note to end on.

Frequent topics